Rare Employment: Part Two
In part one of this blog, I outlined some of the key issues affecting individuals with a rare condition and employment. I also outlined some
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Rare Employment: Part One
Rare disease could touch any one of us, or a member of our family, at any point in time. It’s in our own interests to do something positive
It's Here! Fabry Awareness Month 2023
April is Fabry Awareness Month. The purpose of the month is multi-faceted:
it helps to raise awareness of the disease amongst the ...
Could it be Fabry? A plea from the Heart
Fabry Disease can affect the heart and there are specific cardiac issues that are red flags if you know what to look for. Upon...
Could it Be Fabry?
Could it be Fabry? It took years for my symptoms to be finally recognised as Fabry Disease. By this time my
Mental Health and Fabry Disease
Mental Health Awareness Week was even more important this year because of Covid-19 and the impact of the lockdown. It got
Fabry Specialist Nurse Update
As per my last post, I was due an appointment with a Specialist Nurse from the Salford Royal Metabolic Team. This took
Reflections on the Lockdown to date.
It’s been an interesting few weeks in #lockdown. I had my shielding letter on the first day of issue and it came as no surprise. Twelve
Wading through treacle
Unfortunately, despite the emotional stresses being reduced I continue to suffer from angina, depression and anxiety. Medication has definit
The Beginning
I was diagnosed with #Fabry Disease at the end of 2015 after being quite ill for almost two years. Although I did have some indications of
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