Support Organisations

There are some wonderful support organisations who are dedicated to make life easier for both adults and children with Fabry. I have put together a list of the organisations that I have found particularly helpful, but if I have missed any that you would like to see featured then please let me know and I will add them. There is also a Fabry International Network that brings together organisations from across the world that offer support for the Fabry Community - I have added a link to their member page that lists these support organisations by country.

MPS Society

A support organisation that provides advice and information for individuals and families suffering from MPS, Fabry and related diseases.

Website: https://www.mpssociety.org.uk/

Metabolic Support UK

Offers support, advice and resources to individuals with a range of metabolic conditions, including Fabry.

Website: https://www.metabolicsupportuk.org/

National Fabry Disease Foundation

USA based organisation that provides support, resources and fundraising for Fabry Disease.

Website: https://www.fabrydisease.org/

Canadian Fabry Association

Good range of resources and information for the Fabry Community

Website: https://www.fabrycanada.com/

Fabry Support and Information Group

USA based organisation providing information and support for individuals with Fabry.

Website: https://fabry.org/

Support Organisations by country

Fabry International Network Members page