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Support Organisations

There are some wonderful support organisations who are dedicated to make life easier for both adults and children with Fabry. I have put together a list of the organisations that I have found particularly helpful, but if I have missed any that you would like to see featured then please let me know and I will add them. There is also a Fabry International Network that brings together organisations from across the world that offer support for the Fabry Community - I have added a link to their member page that lists these support organisations by country.

MPS Society

A support organisation that provides advice and information for individuals and families suffering from MPS, Fabry and related diseases.



Metabolic Support UK

Offers support, advice and resources to individuals with a range of metabolic conditions, including Fabry.



National Fabry Disease Foundation

USA based organisation that provides support, resources and fundraising for Fabry Disease.



Canadian Fabry Association

Good range of resources and information for the Fabry Community



Fabry Support and Information Group

USA based organisation providing information and support for individuals with Fabry.



Support Organisations by country

Fabry International Network Members page

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